Monday, October 29, 2012

A Poem on ALS

I got the sweetest email the other day from a new friend named Hollie. Her husband Adam has ALS and they shared a poem that Adam wrote with me. I loved it and they gave me permission to share it here with you too!
By: Adam Caldwell
My legs don't listen to me any more
My hands forgot what my fingers are for.

My lungs can't seem to hold any air
None of this seems very fair.

My necks not up to the task at hand
My head feels like 50 pounds of sand.

My muscles are all shrunk and dwindled
I feel like I've been robbed and swindled.

My voice has almost joined the void
Good thing I have two thumbs and an android!

Love is something that will never strain
It eases the hurt and the anger and pain.

Spirit is one thing they can't take away
And I've got plenty some people would say.

I remember as bad as it gets you see
That there's always someone worse than me.

So ill finish my life just like I started
And cherish every moment until we're parted.


  1. Wow! What a powerful poem. We love your blog and your posts are quite moving, as they capture all that ALS embodies: both weakness and strength, both sadness and hope. We're sorry you are part of the ALS community; nobody should have to be. However, we are thankful to have you to raise ALS awareness through this blog!

    Your fellow ALS advocates, Winning the Fight.

  2. In 2006, 25-year-old Jason DaSilva was on vacation at the beach with family when, suddenly, he fell down. He couldn’t get back up. His legs had stopped working; his disease could no longer be ignored.

    Just a few months earlier doctors had told him that he had multiple sclerosis, which could lead to loss of vision and muscle control, as well as a myriad of other complications. Jason tried exercise to help cope, but the problem only worsened. After his dispiriting fall on the beach, he turned to his Mom, who reminded him that, despite his disease, he was still a fortunate kid who had the opportunity to pursue the things he loved most: art and filmmaking. Jason picked up the camera, turned it on his declining body, and set out on a worldwide journey in search of healing, self-discovery and love.

    www (DOT) cultureunplugged (DOT) com/documentary/watch-online/play/51416/When-I-walk